Thank you all for praying for Lyla's cardiologist appointment on Thursday! She had the best appointment ever. They always start with blood pressure which she hates and then she is scared and crying the rest of the appointment. But on Thursday she did awesome with the blood pressure! She wasn't a fan of the pulse ox (basically a bandaid with a red light on her finger), but she quickly recovered and got through the EKG too!
So we started to give Lyla lunch and then we were called back for the dreaded echo... We popped in the movie Frozen and I fed Lyla the rest of her lunch (including cookies :-) during the beginning of the echo. The last part is always the hardest and also the most important because that's when they get pictures of her pulmonary branch. They have to prop her shoulders on a pillow with her head hanging back so they can use the probe under her chin. And this always occurs about 30 minutes after they've started the echo, so she's already reaching her limit of laying still anyway. But this time, we bribed her with cookies for afterward and the binky and she did awesome!!! They got all the pictures they needed!
We met Lyla's new doctor and really liked him. He is the cath Dr who has been following Lyla's case anyway, but it was nice to finally meet him in person. We got the good news that is seems like Lyla is growing into her arteries. Basically, the arteries were narrowed because of how small she and they were. But as she's growing, her arteries are growing as well, which in turn is alleviating some of the tension which was making them narrow. The Dr was really encouraged to see this on the echo and only needs to see us back in 6 months. He didn't have an explanation for our concern that she's been getting out of breath easily and tires quickly when playing and running around. For now, we'll keep an eye on it pending other tests if he still can't see a reason for these symptoms.
We are praising God for such great appointment and the good news we got as well! WE've been praying so hard since she was born that her arteries would grow and be less narrow, so we're thankful that we're beginning to see how God is answering that prayer. And a huge extra bonus...Lyla got to meet Elsa from Frozen on the way out of the hospital!! She was so excited and got her picture taken with her too:-) Again, thank you all for praying!! I hope you're encouraged as well as we see God answering our prayers. God is good friends ;-)
